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Arlene's Journey

Updated: Aug 2

Due to a misdiagnosis and incorrect treatment, her health deteriorated. Consequently, she had to take charge of her own health and now she is ready to share her experience and hopes it will help others.


Dermatomyositis is a rare autoimmune connective tissue disease that falls under the category of inflammatory myopathies. It is characterized by chronic inflammation affecting the muscles and skin simultaneously. This condition leads to muscle weakness, pain, and fatigue, along with distinctive skin manifestations such as a reddish or purplish rash, typically on the face, neck, shoulders, and chest. The exact cause of dermatomyositis is not fully understood, but it is believed to involve a combination of genetic predisposition and environmental factors triggering an abnormal immune response.



This complex disease can impact individuals of all ages, including children and adults, although it is more commonly diagnosed in adults between the ages of 40 and 60. Dermatomyositis can have varying degrees of severity, with some cases being mild and manageable, while others may be more debilitating and require aggressive treatment to control symptoms and prevent complications.





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